Comments on: pointy

By: marti

marti — Sun, 02 Apr 2006 03:41:00 +0000

Susan,
Diagnosis = respite care. See if you can get both. Personal Care Attendant, too, may be something you can qualify for … Also, private school may not have resources to understand fully the issues that Henry needs to have addressed. Also, know that Henry cannot understand the social consequences because he doesn’t have the hard wiring to understand them. Or, he may be able to understand them while he hears them explained because he’s brilliant, but because of his disability, he cannot control his reaction at any given time depending on the situation. Give Charlie a special hug for me, a motorcycle riding redhead from Minnesota who thinks she’s probably like to laugh with him sometime, too. Yea little guy, life bites … but Charlie sounds like a “weather the storm” kind of child, and you know that you will NEVER neglect him. When you have to be with Henry, Wade may have to spend extra time with Charlie when he gets home or on weekends. And, he’s very, very smart and loves his big brother, and when he is old enough you will use the socially appropriate words to help him understand why some things are harder for Henry, and why Henry needs extra people in his life to help him learn that stuff. Trust me. Charlie already knows that. If he’s socially typical he sees the difficulty that Henry has … he just doesn’t have the words yet.

By: Just Susie

Just Susie — Sat, 01 Apr 2006 02:10:00 +0000

You know I was wallowing at my house, recovering from the friggin tick bite (is it Lyme? no it isn’t), dealing with Liam’s hand-foot-mouth and having Aunt Flo show up when I don’t want her too.

This is a sucky couple of weeks for a lot of people and I say we all meet by the booze pool, put the kids in floaties (no drinking the pool, kids!) and breathe. God a breathe would be nice, wouldn’t it?

Oh and I just posted pictures from Liam’s first haircut. Something about the shape of Charlie’s face or head reminds me of my Liam.

By: MamaK

MamaK — Fri, 31 Mar 2006 23:22:00 +0000

It’s hard raising kids. Ours are mostly grown though we do have one special needs child who is also speech impaired still at home. Life as such has presented us with many challenges but also much growth. I couldn’t imagine life without her. Though it took me years to say the words of her diagnosis out loud. Don’t worry, the other children (we have 5 total) learn to be more grace filled, aren’t so self centered, and actually are better adjusted. It does take constant monitoring…. this process… of everyone’s emotional tank. But still I can’t think of a greater cause or endeavor than my children.

By: Joel s

Joel s — Fri, 31 Mar 2006 23:16:00 +0000

from long experience, I can honestly tell you that things almost always work out. As long as nobody dies, that is.

Try to solve the problems individually, looking at them as a group never, ever helps.

I wish I could help, but the commute to babysit is just too far :).

Sucks that your one son feels so left out, but at least you care. Since you care, I know you'll put in the effort to try and change things. Maybe plan one day a month that you spend with him? it seems like a small thing, but if you hype it up enough it could make a big deal. (ahhahaa, that sounds so cruel, hype up a small event to make it better.)

By: vanessa

vanessa — Fri, 31 Mar 2006 22:16:00 +0000

Hey Susan-where do you live? I am a fulltime childcare provider and also may be able to think of someone in wherever it is you are…
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By: Homestead

Homestead — Fri, 31 Mar 2006 19:48:00 +0000

Completely off topic but… have you read any books by Temple Grandin?? She’s the keynote at a conference in DC I don’t get to attend because I will be too round to fit in an airplane seat. I haven’t read any of her stuff but I hear it is phenomenal (sp?) and I wanted some opinions.